What is Madelung’s Deformity?

Madelung’s Deformity is a rare wrist deformity that affects around 1 in 800,000 but this is just a rough guide as not everyone gets correctly diagnosed due to the rarity of it.

Madelung’s Deformity effects the Ulnar & radius bones in the forearm & wrist. they grow faster than they should and continue to grow when they should of stopped.

Madelung’s Deformity becomes more apparent during puberty (ages 8-12) due to the growth spurt that occurs during this time, it is more common in females than males.

There is no cure at present for Madelung’s Deformity it can be managed with pain medication, wrist supports & other coping techniques, which differs from person to person.

In some cases surgery is sometimes recommended.

Surgery may or may not work depending on the severity of the Madelung’s & it could make The wrist (wrists) worse.
Once surgery is done it can not be undone.

Bilateral Madelung’s Deformity is when it presents in both wrists around 50% of Madelung sufferers have it in both wrists.

4 thoughts on “What is Madelung’s Deformity?

  1. clare murphy Reply

    Great info well done. Please let ppl know that madelungs can be connected with other conditions. Inform them to ask their dr for a simple blood test.

    • Julie Kreuger Skjolaas Reply

      What possible other conditions? What type of blood test do I need to take?

  2. Adele Reply

    My daughter also suffers with this quite badly. Great article X

  3. Julie Kreuger Skjolaas Reply

    I am a 47 year old woman that found out today that I probably have Madelung Deformity. Went to an orthopedic doctor today because of consistent pain in my right wrist for the past 3 weeks.. Thought it was early arthritis from my “wrist surgeries” I had as a kid. I was diagnosed as having “cysts” on my growth plate on both wrists within 1 year of each other (early 80’s). They removed my growth plate, broke and reset my bones, and I have had limited mobility since. Had no idea I was misdiagnosed until today. I am interested in learning more about this genetic deformity and to learn about managing this new onset pain. It reminds me of house my wrists felt before I had surgery years ago. Also, does anyone know of any medical centers or physicians that specialize in this in the United States?

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